Transformation is Needed Now - Part 2

Building a strong and integrated health data infrastructure

Healthcare generates a significant part of the world’s total volume of data, which could generate crucial insights necessary to improve nearly all aspects of healthcare, but we are collectively still failing to fully capture its value. In Canada, health data stakeholders often work in silos, despite their critical role in contributing to stronger, holistic, and high-quality health data that is connected.

Canada must create clear pathways to foster better sharing, integration, and use of standardized health data so innovative diagnostics and medicines reach patients faster.

This video explores the significance of data, transformation, and collaboration in improving patient outcomes and advancing healthcare innovation. Roche Canada is excited to see the federal government making this a priority. We must build a strong and integrated health data infrastructure across Canadian health systems.

In this video we hear from leaders in the Canadian ecosystem, including:

  • Eva Villalba, Executive Director, Quebec Cancer Coalition

  • Dr. Gerald Batist, Director, Segal Cancer Centre, Jewish General Hospital 

  • Victoria Hodgkinson, Executive Director, Canadian Neuromuscular Disease Registry, and Chief Scientific Officer, Lumiio 

  • Damon Goodwin, CEO, ResearchNB

  • Nicolas Vachon, Director, Digital Healthcare, Roche Diagnostics Canada

  • Michele D’Elia, Executive Director, Medical & Scientific Affairs, Roche Diagnostics Canada 

Key Takeaways:

  • Financial support alone is not enough to transform healthcare. It requires changes in how data is collected, integrated, and shared effectively to impact patient outcomes. This transformation should focus on breaking down barriers to accessing the best possible treatments and preventing diseases.

  • Canada needs standardized data collection and sharing across healthcare facilities. Standardizing shared data would enable healthcare professionals to track patients in real-time, make informed decisions, tailor treatments, and identify trends and patterns for better intervention and prevention.

  • Public and private institutions, non-profits, and research organizations must work together to build a robust data infrastructure, establish interoperability and security standards, to create an environment conducive to integrating and sharing healthcare data. 

“If we could standardize how data is collected and shared, it would be a true game changer for patients. The Pan-Canadian Data Strategy is indeed a step in the right direction by the Federal Government; however, on its own, it's not enough.” Nicolas Vachon, Director, Digital Healthcare, Roche Diagnostics Canada

“The data needs to follow the patient so that all healthcare professionals can actually help the patient get the best health outcomes possible.” Eva Villalba, Executive Director, Quebec Cancer Coalition

“...when you look at real-world evidence, real-world data, value-based pricing, all of the kinds of trends of where we're going as a society and how we measure the impact of innovations in the health sector, real-world evidence becomes critical.” Damon Goodwin, CEO, ResearchNB

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